My agony weekend *Sunday*

Ok, so, although I’m feeling better in myself after eating a small plate of Sweet Potato chips cooked with Coconut oil last night, and not feeling too much pain in my stomach after, I’m still not ‘right’!

I’ve just had a lovely shower and got my Comfy clothes on, but as soon as my bra went on, it came straight back off! 

The pain around my stomach (organ, not area 😉) is so bad! 

This is the same symptom I had around 15 years ago when I couldn’t eat for 6 weeks because digesting food was too painful! 

Fingers crossed I’m ok after my dinner today! 

Is this MS, Fibromyalgia or something totally different? 

Picture shared via pinterest, words are my own

My agony weekend *Friday*

When ur in so much pain, only lying flat is on option & even the tiny weight of Walter the Whippets head on ur stomach area makes u feel like u’ll pass out! 😪

Come home DebbieRahRah 😫

Photo is my own as are the words used in post

My fight with ‘Fight Klub’ and Multiple Sclerosis

Please understand, before reading any further. This is a very raw, straight from the heart, honest blog!

There is also some rude language right at the end of this piece which I shall not appologise for as it’s how I feel!

 

I feel so angry!
It’s so unfair!
I just want to better myself!
I found something I love… Fight Klub!
It’s extremely hard core!
I love it!

Every time I do it I over heat
My core temperature rises so high
And I can’t control it!
I have extreme sensitivity to heat!

 

I’m trying different ways to keep my temperature down but nothing has worked yet.
Even after the class finishes my temperature continues to rise!
I have to finish the class before everyone else, to try and lower my core temperature enough to get to the car!

After the class my daily MS symptoms are worse, every single one!
My legs are weaker and give way under me
My vision blurs in my right eye to the point of not being able to see much
My hearing starts to fade and all the noises around me sound muffled
My MS fatigue is worse than ever
My speech slurs
I find it hard to catch my breath!
I can’t talk, if I do I loose my breath

 

I even get old symptoms reoccur!
My vertigo comes back
Last night I had the MS Hug again! Thats been a while! This is really not something you want when your already so out of breath you think you might pass out!

The MS hug is a symptom of multiple sclerosis where you feel as if you have a tight band around your chest or ribs or it can be pressure on just one side of your torso. Some people find that it is painful to breathe.

 

Last weak I fell after a fight klub class!
I hadn’t realised the change in floor height as I walked out of the room and ended up in a heap on the floor feeling sorry for myself!
Thanks to Hannah the instructor for speaking sense to me, I pulled myself together with only my pride bruised!

Last night’s class was one of my best classes! There’s no in between for me, I’m either all in or all out! I had it together, throwing my punches but not to hard, it is shadow boxing after all!

After the class last night my legs were weaker than normal and I was extremely hot!
It was during the journey home that it happened, a friend had taken us that night, we often take it in turns to drive. I say we when I really mean my partner and our friend take it in turns to drive! As if i could drive after that class!
I must look an absolute state afterwards, but that only reflects how hard I’ve worked!

I think it can be quite a shock for people to see me like that! I know it must be upsetting when it is out of your control and there is litterally nothing you can do to put me right.
Why do I do it to myself? Because I have found something that is just perfect for me to let out my anger, my frustration! I just need to learn more self control and not put every ounce of energy I have into it because of course, I still have to be able to walk back to the car afterwards, oh and then there’s the walking from the car to my home when we return!
Being carried to the bungalow is not going to be an option! Not again!

It was years ago that exercising was a big no no if u have ms but then they learnt, the symptoms that come during and after exercising are short lived and with no lasting damage!
As long as I can cope with these symptoms I’ll be ok, thats what I’m trying to do, find a way of coping so I can continue to do something tht I love so very much!

So here are my words for today, tomorrow and as long as I have MS (obviously this is for life or until they find a cure!)…
Know this, I will always stand up to it! I will never give in because like Fight Klub, I’m either all in or I’m all out! There’s only one way to be, I will never stop fighting

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