This week in one post… A week of uncertainty

January 6th – 12th 2020

πŸ’› Monday 6th January –

Made the most of our last free day before my wife went back to work the next day, after our alternate weekend
Made the most of our last free day before my wife went back to work the next day, after our alternate weekend

πŸ’š Tuesday 7th January –

I welcomed back my wonderful carer Steph, after her time off over her short weekend with a lovely trip to the far far away hospital, aka UHCW, for a catch up with the dietitian! What a treat!
I welcomed back my wonderful carer Steph, after her time off over her short weekend with a lovely trip to the far far away hospital, aka UHCW, for a catch up with the dietitian! What a treat!

🧑 Wednesday 8th January –

Another day out to the far far away hospital for my monthly MS meds! #Tysabri
Another day out to the far far away hospital for my monthly MS meds! #Tysabri

πŸ’œ Thursday 9th January –

Guess where I went today… The not to far hospital, aka GEH, for a chat with my Neuro Physio. Baby steps but I seem to be going in the right direction to turning my leg muscles on again. And a treat for lunch, we went to The Harvester where I had my favorite Vegan Burger ‘The Purest’
Guess where I went today… The not to far hospital, aka GEH, for a chat with my Neuro Physio. Baby steps but I seem to be going in the right direction to turning my leg muscles on again. And a treat for lunch, we went to The Harvester where I had my favorite Vegan Burger ‘The Purest’

πŸ’™ Friday 10th January –

Today, a rest day was called for! With dizzy spells and Vertigo, Chair Pilates wouldn’t have been a good idea! So Steph my Pocket Angel, aka PA/Personal Assistant/Carer collect my carrier bag full of medication from the chemist & work her magic around the bungalow, before sitting down to watch the first episode of the British Comedy-Series ‘Sex Education’ on Netflix (its a brilliant series, if you haven’t seen it!) The 2nd season starts soon & I wanted to rewatch the 1st to remind myself. it was a brilliant ‘be kind to yourself’ day!
Today, a rest day was called for! With dizzy spells and Vertigo, Chair Pilates wouldn’t have been a good idea! So Steph my Pocket Angel, aka PA/Personal Assistant/Carer collect my carrier bag full of medication from the chemist & work her magic around the bungalow, before sitting down to watch the first episode of the British Comedy-Series ‘Sex Education’ on Netflix (its a brilliant series, if you haven’t seen it!) The 2nd season starts soon & I wanted to rewatch the 1st to remind myself. it was a brilliant ‘be kind to yourself’ day!

❀ Saturday 11th January –

Katie one of my Saturday girls came to help me today. Hadn’t seen her since the middle of December, so was nice to have a catch up. Other than that, was just a normal lazy Saturday!
Katie one of my Saturday girls came to help me today. Hadn’t seen her since the middle of December, so was nice to have a catch up. Other than that, was just a normal lazy Saturday!

πŸ’™ Sunday 12th January –

The day I have been so worried about, has turned into a really lovely day! When I last saw my Neurologist for my MS, he wanted to run tests to try and find out why my mobility has decreased so much in the last 6 months when my MRI isn’t showing anything. These tests are to be done with me as an ‘inpatient’ I had a letter before Christmas to advise me that a provisionary date had been set for 12the January. The letter explains that while they do their best to book people beds, it isn’t always possible for a bed to be available for that day. I had to phone the ward this morning to check if there was a bed for me, but nothing. So, I have to keep calling every morning until one becomes available. They will also call me during the day if a bed becomes available.

Well, no bed today! Hip hip hooray! So we went out for lunch instead! And I have to phone again in the morning!


​Day 3 #7daysofselflove challenge:Β I love my body because…

​Day 3 #7daysofselflove challenge;
I love my body because…

She accepts the medication I have to have every 28 days, to keep my Multiple Sclerosis at bay! 
I love my body because…

She lets me do all these amazing things in the photos where I have raised money for different MS charities I support
I love my body because…

She accepts all the hard work I put her through and she doesn’t let me down!
I love my body because…

She’s where my beautiful soul lives
πŸ’ŽπŸ’ŽπŸ’ŽπŸ’ŽπŸ’Ž

Photos are all my own as are the words written

Day 1 of Mel Wells 7 day self love challenge

Ok so, its the first day of the #7daysofselflove with Mel Wells 

Today’s challenge is to share one thing that you love about yourself!
Before my MS diagnosis, I was in a really confident state of mind and felt comfortable saying “I love every part of my being”

Since then I’ve always felt uncomfortable saying I love any part of myself other than my smile and my soul! 
I understand that it’s okay to have self appreciation and self love, as I have been in that place before, but i find it hard now, 7 years later, to accept the change in myself, in my figure. 
The other hard thing for me today is to share this about myself so publicly!

I hate the thought of anyone feeling sad for me, so things like this I would rather keep between myself and close friends! 

*this is not a pity post, this is my journey to self love*
I’m always up for a challenge though, to prove to myself that I’m working on being a better version of myself! 
The other thing you will notice is there is no picture of me, just my very raw, messy handwriting! 

The picture is from one of my actions I had to do for my health coach session with Louise.

‘Write a letter from your future self’ 

I hope it will all make sense when you read it/if you can read it! 
I didn’t want to re-write it and pretty it up because, that just wouldn’t be the right thing to do!


πŸ’š

Picture is my own, words are my own