This week in one post… A week of uncertainty

January 6th – 12th 2020

💛 Monday 6th January –

Made the most of our last free day before my wife went back to work the next day, after our alternate weekend
Made the most of our last free day before my wife went back to work the next day, after our alternate weekend

💚 Tuesday 7th January –

I welcomed back my wonderful carer Steph, after her time off over her short weekend with a lovely trip to the far far away hospital, aka UHCW, for a catch up with the dietitian! What a treat!
I welcomed back my wonderful carer Steph, after her time off over her short weekend with a lovely trip to the far far away hospital, aka UHCW, for a catch up with the dietitian! What a treat!

🧡 Wednesday 8th January –

Another day out to the far far away hospital for my monthly MS meds! #Tysabri
Another day out to the far far away hospital for my monthly MS meds! #Tysabri

💜 Thursday 9th January –

Guess where I went today… The not to far hospital, aka GEH, for a chat with my Neuro Physio. Baby steps but I seem to be going in the right direction to turning my leg muscles on again. And a treat for lunch, we went to The Harvester where I had my favorite Vegan Burger ‘The Purest’
Guess where I went today… The not to far hospital, aka GEH, for a chat with my Neuro Physio. Baby steps but I seem to be going in the right direction to turning my leg muscles on again. And a treat for lunch, we went to The Harvester where I had my favorite Vegan Burger ‘The Purest’

💙 Friday 10th January –

Today, a rest day was called for! With dizzy spells and Vertigo, Chair Pilates wouldn’t have been a good idea! So Steph my Pocket Angel, aka PA/Personal Assistant/Carer collect my carrier bag full of medication from the chemist & work her magic around the bungalow, before sitting down to watch the first episode of the British Comedy-Series ‘Sex Education’ on Netflix (its a brilliant series, if you haven’t seen it!) The 2nd season starts soon & I wanted to rewatch the 1st to remind myself. it was a brilliant ‘be kind to yourself’ day!
Today, a rest day was called for! With dizzy spells and Vertigo, Chair Pilates wouldn’t have been a good idea! So Steph my Pocket Angel, aka PA/Personal Assistant/Carer collect my carrier bag full of medication from the chemist & work her magic around the bungalow, before sitting down to watch the first episode of the British Comedy-Series ‘Sex Education’ on Netflix (its a brilliant series, if you haven’t seen it!) The 2nd season starts soon & I wanted to rewatch the 1st to remind myself. it was a brilliant ‘be kind to yourself’ day!

❤ Saturday 11th January –

Katie one of my Saturday girls came to help me today. Hadn’t seen her since the middle of December, so was nice to have a catch up. Other than that, was just a normal lazy Saturday!
Katie one of my Saturday girls came to help me today. Hadn’t seen her since the middle of December, so was nice to have a catch up. Other than that, was just a normal lazy Saturday!

💙 Sunday 12th January –

The day I have been so worried about, has turned into a really lovely day! When I last saw my Neurologist for my MS, he wanted to run tests to try and find out why my mobility has decreased so much in the last 6 months when my MRI isn’t showing anything. These tests are to be done with me as an ‘inpatient’ I had a letter before Christmas to advise me that a provisionary date had been set for 12the January. The letter explains that while they do their best to book people beds, it isn’t always possible for a bed to be available for that day. I had to phone the ward this morning to check if there was a bed for me, but nothing. So, I have to keep calling every morning until one becomes available. They will also call me during the day if a bed becomes available.

Well, no bed today! Hip hip hooray! So we went out for lunch instead! And I have to phone again in the morning!


Having a head cold when your immune system is already attacking itself!

​Its a Pajamas all day and Netflix kinda day! 
Thoughts come before action, but this time my body has to come first! 
Yoga is teaching me to take better care of myself! Even if it means cancelling favourite classes because I need to reserve my energy! 

I always forget that even the tiniest head cold can have major impact when you have a chronic illness where your immune system attacks itself on a daily basis!
Hoping the more I rest, the quicker I can shift this head cold. Woke up this morning feeling like my tonsils have taken over my throat! 
Looking forward to my poorly wifey getting home from work so we can netflix and chill together until Tuesday! 😍

Picture shared via Pinterest, words are my own

💮💮💮